Category: Blog
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What World Schizophrenia Day Meant to Me
I really struggled with the concept of World Schizophrenia Day. What does that even mean? Is it a day we are supposed to celebrate this awful disease that robs us of our loved ones and all that they once were, and could have been? Is it a day to recognize…
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Protecting Your Legacy: The Importance of Estate Planning for Caregivers of Individuals with Serious Mental Illness
As caregivers of individuals with serious mental illness (SMI), we dedicate ourselves to providing love, support, and care to our loved ones. Amidst the daily challenges and uncertainties, it’s easy to overlook our own future and well-being. However, estate planning is not just about financial matters—it’s about ensuring the continuity…
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Nurturing the Caregiver: The Importance of Self-Care in the Journey of Caregiving
Caregiving is often described as a labor of love, but behind the scenes lies a reality that can be profoundly taxing and emotionally draining. As caregivers, we dedicate our time and energy to supporting our loved ones, often at the expense of our own well-being. However, amidst the demands and…
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Navigating Tough Care Decisions: A Perspective for Caregivers of Individuals with Serious Mental Illness
I was lucky enough to be interviewed by Rachel Star Withers who is the host of PsychCentral’s, “Inside Schizophrenia Podcast.” In our discussion, we covered the landscape of what it means to be a caregiver of someone with a serious mental illness. Following is a loose summary of our conversation,…
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The Power of Paper
What good documentation can do for your ability to work with, negotiate with and influence mental health professionals… In the intricate landscape of mental health care, having a well-documented paper trail can be a game-changer. It’s not just about compiling paperwork; it’s about crafting a comprehensive narrative that chronicles your…
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You’re Invited: Johns Hopkins Symposium on June 24th and 25th, 2024
Every year Johns Hopkins holds a symposium to discuss ways to improve care and ultimately cure diseases like schizophrenia. In the words of Johns Hopkins, “Our symposiums bring together world-renowned experts in psychiatry and neuroscience whose areas of expertise are diverse yet complementary, towards better care and eventual cure of…
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Navigating SSI: A Primer for Your Loved One with Serious Mental Illness
If you have a loved one struggling with a serious mental illness, you understand the challenges they face on a daily basis. From managing symptoms to navigating the complexities of the healthcare system, every step can feel like a monumental task. One area that often causes confusion and stress is…
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Navigating Legal & Financial Challenges: A Quick Overview for Individuals with Serious Mental Illness
Legal & Financial Issues are Ongoing: Are you dealing with other legal & financial issues, including things like SSI/SSDI, food stamps? Living with a serious mental illness (SMI) can present numerous challenges, extending beyond medical care to encompass legal and financial aspects. In this blog, we’ll explore some of the…
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Understanding Anosognosia: The Hidden Challenge of Serious Mental Illness
Living with a serious mental illness can be a daunting and often bewildering experience, both for the individual affected and their loved ones. While the symptoms of conditions such as schizophrenia, bipolar disorder, and severe depression are well-documented, there is another aspect of these illnesses that often goes unnoticed but…
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HIPAA Strikes Fear & Frustration in the Caregivers Heart
The Health Insurance Portability and Accountability Act of 1996 (HIPAA) is a federal law that requires the creation of national standards to protect sensitive patient health information from being disclosed without the patient’s consent or knowledge. On face value, this is a great thing. We need to hold our medical…
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